Nicole Jeray is proud to be part of “Swinging for Sleep!” For every birdie she make in LPGA tournament competition this year, money will be donated to Wake Up Narcolepsy (WUN) and the Narcolepsy Network (NN) to help improve awareness and funding for narcolepsy, which affects an estimated 150,000 to 200,000 Americans. In 2011 she made 90 birdies and raised $4,500 for the Narcolepsy Network. In 2012 I made 121 birdies and raised $37,000 for WUN and NN. Thank you to everyone who supported this worthwhile and incredibly important program. Click here to find out who supported Jeray in the past.
Currently she has not met her goal of $50,000, she has made 81 birdies and has raised over $29,000
Thank you for checking out “Swinging for Sleep.” Jeray is looking forward to doing her part to make this program a success!
Jeray's Story: Living with Narcolepsy
I’ve tried many medications over the years. Until recently, all of the medicines for narcolepsy treat only the symptoms. Stimulants are used for sleepiness and anti-depressants for cataplexy, sleep paralysis, and hypnogogic halluncinations. The stimulants that I’ve tried are ritalin, dexadrine, and cylert. After attending my first Narcolepsy Network (NN) conference in 2000, I learned about a new wake promoting drug called Provigil. Provigil helped me tremendously. The anti-depressants that I have tried include anafranil, paxil, and efferxor. Anafranil helped the paralysis symptoms, but I gained over 40 pounds and became dramatically sleepier. I was on anafranil for over four years not knowing there were alternatives. Paxil did nothing for me, and effexor worked pretty good.
Then a few years ago, Xyrem came out. This medicine actually treats the problem instead of the symptoms. Xyrem, taken twice during the night, puts my brain in better sleep stages, so I’m much more awake throughout the day. My cataplexy is greatly improved, no sleep paralysis, and no hallucinations. Xyrem is the only medicine to be approved for the treatment of cataplexy and excessive daytime sleepiness associated with narcolepsy. I am very thankful for this medication. Xyrem has especially made my life much more enjoyable. I still take a little provigil and effexor as well. With this drug combination, I feel I am living an extemely fulfilling life.
Even with the three medications I take, I must still follow certain “rules” to feel my best. Some days are better than others. These rules are: drink lots of water, limit my carbohydrates, stay away from sugar, eat small meals more often, schedule in a nap before important activities, don’t over schedule myself, and stay away from alcohol. It is also necessary for me to not have important discussions when I am sleepy or after 7pm because my brain doesn’t work as well, and my patience is nearly non-existent. I am lucky to have supportive family and friends.
Topics: Jeray, Nicole